As many of you know, in December of 2016, Chanin was diagnosed with a rare and aggressive form of stage 4 cancer known as High Grade Neuroendocrine Carcinoma; her primary cancer believed to be gastrointestinal in origin. Many cancerous lesions were found on her liver, where the cancer had spread, with the largest tumor measuring a large 7.5cm x 7.5 cm. Unfortunately, the type of cancer she has is very painful, as her liver is pushing against all her internal organs and placing a lot of pressure on her body. Because of the incredible speed the tumors grow, time has been a factor, and surgery has not been an option. Chanin immediately began intensive chemotherapy 3 days in a row, every 3 weeks. She recently completed her 4th round of chemo and has two more rounds to go. Although the chemotherapy comes with many unwanted and uncomfortable side-effects, it is proving to be effective, and the largest tumor has shrunk to about the size of 3cm. We are very thankful for this positive news; however, we all know that there is still a lot of fight left and there is no cure. The tumors will continue to come back and Chanin will have to undergo further treatments.
Chanin remains positive and is committed to this battle. She has been doing everything she can to survive. She has always been a survivor (previous double-lung transplant and kidney transplant!) and knows what she has to do to continue to live.
Many people have asked how they can help us out during this difficult time, which is why we decided to start this fundraiser. I’m trying my hardest to do many of the things Chanin used to do, and Chanin’s parents have also been a great help to us, but there just isn’t enough time in the day to do it all and still be able to spend quality time with Chanin and our son, Gavin. Fortunately, I am employed, and I have a supportive employer. But, we’ve had a lot of unexpected expenses come our way relating to our situation and some support would be very helpful.
Plans for donations:
- Medical Expenses: Because of the extensive medical expenses relating to Chanin’s cancer treatment, we already owe our full deductible to our medical insurance and our out-of-pocket max. Additionally, we are driving around 40 miles each way to Phoenix and back an estimated 3-4 times a week to get Chanin to her doctor’s appointments and chemotherapy.
- Meals: We’ve had a couple friends/family donate meals to us which we are EXTREMELY grateful for! I do know how to cook, but it has been very difficult for me to find the time to prepare and cook healthy meals with all that is going on, and nutrition is very important for Chanin. There are some online meal services which deliver food and also some places where we can go to prepare the meals ahead of time and freeze them until we’re ready to use them. These services do cost more than our normal grocery shopping, but they save a ton of time and will allow us to have some “real” meals at home.
- Electric Scooter: We would like to buy Chanin an electric scooter to help her can gain back some of her independence. Between Chanin’s cancer and chemotherapy, her body has become very weak. She currently uses a walker to get around, but she is unable to go anywhere that requires her to walk any longer distance than the typical car to doctor’s office. Thanks to generous friends of ours who donated tickets to us, we’re planning a trip to Disneyland soon, and the scooter would allow Chanin to make her way around the theme park with ease. Chanin also misses doing simple things like shopping, running errands and participating in regular family activities, which the scooter would allow her to resume.
- Housekeeping: We are looking to hire a housekeeper as I am finding it tough to keep up with the regular household chores. Between my day job, chauffeuring Gavin around, driving to doctor appointments, making trips to the pharmacy, running errands, cooking, doing dishes, etc., it has become increasingly difficult to focus on keeping the house clean, a job Chanin prided herself in doing. We think some help in this area will really take a load off. Also, Chanin needs to be in a clean environment to help avoid infections, so we think this will help.
Those of you who know me know I have a hard time asking for help. It has always been difficult for me to look outside myself for assistance or to share my burden. However, I never expected to be in a situation like the one our family is in right now, and after some encouragement, I decided this might be a good way to go about allowing others a chance to show they care.
Thank you so much for reading and supporting Chanin and our family throughout this journey. We are grateful and appreciative for all the thoughts and prayers being said for us. This is a very difficult and scary time for our family, and we are comforted in knowing that we have all of you on our side.
For many more details about Chanin’s progress you can visit her CaringBridge site here: Chanin’s CaringBridge